Terms of Service 

THIS SITE AND RELATED SERVICES ARE PROVIDED SUBJECT TO THESE TERMS AND CONDITIONS. PLEASE READ THE FOLLOWING INFORMATION CAREFULLY. YOUR CONTINUED USE OF THIS SITE WILL INDICATE YOUR AGREEMENT TO BE BOUND BY THE TERMS AND CONDITIONS SET FORTH BELOW. IF YOU DO NOT AGREE TO THESE TERMS AND CONDITIONS, PROMPTLY EXIT THIS SITE. 

1. General 

These Terms and Conditions of Use (the “Terms and Conditions”) govern your use of the Eczema Countsweb site (the “Site”) provided by the National Eczema Association (NEA) and Pediatric Dermatology Research Alliance (PeDRA), including without limitation use of all services, content, data, images, information and other materials posted on or available through this Site (collectively, the “Site”).  

2. Trademark 

The NEA name and logo, PeDRA name and logo, and Eczema Counts name and logo, and all related product and service names are NEA’s and or PeDRA’s proprietary trademarks and service marks, and may not be used by any other party without the prior express written permission of NEA and/or PeDRA. 

3. No Medical Advice 

The information posted here by  NEA, PeDRA, or any third party should not be considered as medical advice and is not intended to replace consultation with a qualified physician. Neither NEA nor PeDRA answers specific medical questions through the Eczema Counts platform or provides endorsements or recommendations to any particular product, treatment or provider. 

4. Use of The Site 

NEA and PeDRA hereby grant you a nonexclusive license to use the Site solely for your personal, non-commercial use. As a condition of your use of this Site, you warrant to NEA and PeDRA that you will not use the Site for any purpose that is unlawful or prohibited by these Terms and Conditions. You may not reverse engineer, deconstruct, disassemble or decompile any software or technology underlying the Site or provided through the Site, except to the extent permitted by applicable law. If you breach any of these Terms and Conditions, your authorization to use this Site shall automatically terminate. The contents of the Site may not be distributed, modified, reproduced, or used, in whole or in part, without the prior written consent of the NEA and PeDRA, except that you may download content from the Site to any single computer, provided you keep intact all copyright, trademark, and other proprietary notices. Except as provided in these Terms and Conditions, any use of these materials on any other Web site or networked computer environment for any purpose is prohibited. 

Users of this site must be at least 18 years old and agree to the Code of Conduct. 

5. Privacy Policy 

The NEA and PeDRA vigorously guard the privacy of the information it receives from individuals. NEA and PeDRA’s privacy procedures include the following: neither NEA nor PeDRA sells, rents, or divulges personally identifiable information to anyone unless required by law, with the exception  of donors being recognized by name in certain public-facing materials according to the respective policies of NEA and PeDRA. Deidentified, aggregate data may be shared either internally or externally for purposes of program development, outcomes tracking, or fulfillment of obligations to funding agencies interested in the mission-related impact of NEA and PeDRA.   

6. Copies of These Terms and Conditions; Updates 

You may print a copy of these Terms and Conditions using the print button or feature in your browser. We suggest retaining a copy for your future reference. You should be aware, however, that we may revise these Terms and Conditions at any time, and by your continued use of the Site agree to be bound by future revisions. It is your responsibility to periodically visit the “Terms and Conditions” link on the Site to review the most current version of the Terms and Conditions. You may use your browser to print copies of any updated Terms and Conditions. 

7. Copyright 

All materials posted on this site are subject to copyrights owned by NEA, PeDRA, and other individuals or entities. Reproduction, re-transmission or reprinting is prohibited without prior written permission from the NEA, PeDRA, or the other copyright owner. The Site is owned and operated by the National Eczema Association (referred to as “the NEA”herein). All services, content, data, information and other materials on or directly accessible from the Site are owned by the NEA, PeDRA, or their subsidiaries, affiliates, licensors and/or vendors. The Site is protected by United States and international copyright and trademark laws. Any copies that you make of material or other content provided through the Site must contain the same copyright and other proprietary notices that appear with the material or content. 

8. No Framing 

You may not frame or utilize framing techniques to use, surround or enclose any portion of the Site without the NEA’s and PeDRA’s express written consent. 

9. Jurisdictional Issues 

This Site is controlled and operated by the National Eczema Association from its offices within the State of California, United States of America. The National Eczema Association makes no representation that materials in the Site are appropriate or available for use in other locations. Those who choose to access this Site from other locations do so on their own initiative and are responsible for compliance with local or national laws, if and to the extent local or national laws are applicable. 

10. Disclaimer of Liability 

THIS SITE, INCLUDING ANY CONTENT OR INFORMATION CONTAINED WITHIN IT OR ANY SITE-RELATED SERVICE, IS PROVIDED “AS IS,” WITH ALL FAULTS, WITH NO REPRESENTATIONS OR WARRANTIES OF ANY KIND, EITHER EXPRESSED OR IMPLIED, INCLUDING, BUT NOT LIMITED TO, THE IMPLIED WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, QUIET ENJOYMENT, QUALITY OF INFORMATION, AND TITLE/NONINFRINGEMENT. YOU ASSUME TOTAL RESPONSIBILITY AND RISK FOR YOUR USE OF THIS SITE, SITE-RELATED SERVICES, AND HYPERLINKED WEB SITES. NO ORAL OR WRITTEN INFORMATION OR ADVICE GIVEN BY THE NATIONAL ECZEMA ASSOCIATION OR THE ASSOCIATION’S AUTHORIZED REPRESENTATIVES SHALL CREATE A WARRANTY OR IN ANY WAY INCREASE THE SCOPE OF THIS WARRANTY. 

11. Limitation of Liability 

THE NATIONAL ECZEMA ASSOCIATION, PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE, AND THEIR AFFILIATES, VENDORS, LICENSORS, AND OTHER THIRD PARTIES MENTIONED ON THE SITE ARE NEITHER RESPONSIBLE NOR LIABLE FOR ANY DIRECT, INDIRECT, INCIDENTAL, CONSEQUENTIAL, SPECIAL, EXEMPLARY, PUNITIVE, OR OTHER DAMAGES WHATSOEVER (INCLUDING, WITHOUT LIMITATION, THOSE RESULTING FROM LOST PROFITS, LOST DATA, OR BUSINESS INTERRUPTION) ARISING OUT OF OR RELATING IN ANY WAY TO THE SITE, SITE-RELATED SERVICES AND PRODUCTS, CONTENT OR INFORMATION CONTAINED WITHIN THE SITE, AND/OR ANY HYPERLINKED WEB SITE, WHETHER BASED ON WARRANTY, CONTRACT, TORT, OR ANY OTHER LEGAL THEORY AND WHETHER OR NOT ADVISED OF THE POSSIBILITY OF SUCH DAMAGES. YOUR SOLE REMEDY FOR DISSATISFACTION WITH THE SITE, SITE-RELATED SERVICES, AND/OR HYPERLINKED WEBSITES IS TO STOP USING THE SITE AND/OR THOSE SERVICES. APPLICABLE LAW MAY NOT ALLOW THE EXCLUSION OR LIMITATION OF INCIDENTAL OR CONSEQUENTIAL DAMAGES, SO THE ABOVE LIMITATION OR EXCLUSION MAY NOT APPLY TO YOU. 

12. Accuracy and Integrity of Information 

Although NEA and PeDRA attempt to ensure the integrity and accuracy of the Site, they make no guarantees whatsoever as to the correctness or accuracy of the Site. It is possible that the Site could include typographical errors, inaccuracies or other errors, and that unauthorized additions, deletions and alterations could be made to the Site by third parties. In the event that an inaccuracy arises, please inform NEA and/or PeDRA  so that it can be corrected. Information contained on the Site may be changed or updated without notice. 

13. Your License to Us 

Any communications or material of any kind that you e-mail, post, or transmit through the Site (excluding personally identifiable information of students), including, questions, comments, suggestions, and other data and information (your “Communications”) will be treated as non-confidential and non-proprietary. You grant the NEA and PeDRA a non-exclusive, royalty-free, perpetual, world-wide, irrevocable license to reproduce, transmit, display, disclose, and otherwise use your Communications on the Site or elsewhere for our business purposes. We are free to use any ideas, concepts, techniques, know-how in your Communications for any purpose, including, but not limited to, the development and use of products and services based on the Communications. 

14. Your Communications 

NEA and PeDRA may, but are not obligated to, monitor or review any areas of the Site where user Communications may be made available, including, but not limited to, chat rooms, bulletin boards and other user forums. The NEA and PeDRA, however, will have no liability related to the content of any such Communications, whether or not arising under the laws of copyright, defamation, privacy, obscenity, or otherwise. The NEA and PeDRA retain the right to remove, in their sole discretion, Communications that include any material deemed abusive, defamatory, obscene or otherwise inappropriate. 

15. Acceptable Use Policy 

You may not transmit any material on or through the Site that (a) restricts any other user’s enjoyment of the Site, (b) is unlawful, threatening, abusive, libelous, defamatory, pornographic, profane or otherwise offensive, (c) constitutes or encourages criminal conduct, gives rise to civil liability, or otherwise violates any law, (d) violates or infringes the rights of any third party including, without limitation, patent, copyright, trademark, privacy or any other proprietary right, (e) contains a virus or other harmful component, or (f) contains false or misleading indications of origin or statements of fact.  NEA and PeDRA reserve the right at all times to disclose any information as necessary to satisfy any law, regulation, government request, court order, subpoena or other legal process, or to edit or remove any information, in whole or in part, that in NEA and PeDRA’s  sole discretion is objectionable, disruptive to the Site or in violation of these Terms and Conditions. 

16. Links or Pointers to Other Sites 

Neither NEA nor PeDRA make any representations whatsoever about any other Web site that you may access through this Site. When you access a non-NEA or non-PeDRA site, please understand that it is independent from the NEA or PeDRA and that the NEA and PeDRA have no control over the content on that Web site. In addition, a hyperlink to a non-NEA or non-PeDRA web site does not mean that the NEA or PeDRA  endorses or accepts any responsibility for the content, or the use, of the linked site. It is up to you to take precautions to ensure that whatever you select for your use or download is free of such items as viruses, worms, Trojan horses and other items of a destructive nature. If you decide to access any of the third-party sites linked to this Site, you do this entirely at your own risk. 

17. Social Media Disclaimer 

Information posted on any of NEA’s or PeDRA’s social media sites should not be considered medical advice, a medical recommendation, diagnosis or treatment suggestion. It is not intended to replace consultation with a qualified physician or other health care provider. All links to other sites found linked to NEA’s or PeDRA’s social media sites are provided as a service to the community, but such linkage does not constitute endorsement of those sites by NEA or PeDRa, and as such neither NEA nor PeDRA  is responsible for the content of external Web sites. We welcome and encourage discussion on our sites however, NEA and PeDRA reserve the sole right to review, edit and/or delete any comments it deems are inappropriate, including comments that are abusive, use profanity, are defamatory, or contain “hate speech”. By posting on NEA or PeDRA sites, you assume all responsibility related to the security, privacy and confidentiality risks inherent in sending any content over the Internet. By posting a comment or material of any kind to NEA or PeDRA sites, you agree to the Terms and Conditions as set forth above.  

18. Entire Agreement 

Except as provided below, these Terms and Conditions constitute the entire agreement between the NEA and PeDRA and you pertaining to the subject matter hereof. In its sole discretion, the NEA or PeDRA may from time-to-time revise these Terms and Conditions by updating this posting. You should, therefore, periodically visit this page to review the current Terms and Conditions, so you are aware of any such revisions to which you are bound. Certain provisions of these Terms and Conditions may be superseded by expressly designated legal notices or terms located on particular pages within this Site. 

THIS LEGAL NOTICE IS SUBJECT TO CHANGE WITHOUT NOTICE. 

Privacy Policy

WHAT IS THE PRIVACY POLICY FOR ECZEMA COUNTS? 

Eczema Counts is a gamified online educational platform (website) hosted by the National Eczema Association (NEA) and the Pediatric Dermatology Research Alliance (PeDRA). NEA and PeDRA respect the privacy of each individual who visit the Eczema Counts platform. We are grateful for your support and the critical role you play in helping us continue our valuable work. To protect your privacy, we provide this notice explaining our information practices and the choices you can make about the way your information is collected and used. 

COLLECTION & USE OF DATA 

In order to provide our users the best experience possible on the Eczema Counts platform, we collect information about visitors, such as the number of visitors, what pages they access and the length of their visit. This type of information is shared outside NEA and PeDRA  only as compiled data with no information that can identify any one individual. 

We collect information such as your name, postal address and e-mail address when you choose to share that information. Examples include: when you request information from us, register for Eczema Counts, or provide information to your online profile. This information is used to provide you with information, connect you to the Eczema Counts community, or deliver materials (e.g. game prizes) to you. If you provide your postal or e-mail address, you may receive postal and e-mail communications from NEA and/or PeDRA. We may use demographic data that you provide to tailor your experience on this platform and develop content or activities that are most relevant to you. 

OPTING OUT OF COMMUNICATIONS 

We send out electronic and other communications to Eczema Counts participants to provide updates on platform activities, reminders, news, or other similar messages. You can elect not to receive communications from us, either by updating your communications preferences or by contacting us through our Contact Us form. In addition, all Eczema Counts e-mail communications have easy-to-follow unsubscribe instructions at the bottom of each e-mail. Please note that opting out of email communication might inhibit participants from completing all Eczema Counts game challenges. The NEA and PeDRA are unable to make special accommodations for participants who have opted out to complete any such challenges.   

RIGHT TO BE FORGOTTEN 

In accordance with the European Union’s (EU) General Data Protection Regulation (GDPR), as of May 25, 2018 any individual may request that their information be deleted, corrected, frozen, or updated as desired. To request this, please contact us through our Contact Us form.

USE OF COOKIES 

“Cookies” are small pieces of information that are stored by your web browser on your computer’s hard drive. The Eczema Counts website uses cookies to verify forms. Consult the help menu on your web browser regarding options for preventing or accepting cookies. Please be aware that if you block cookies, some of our website functions may not be available to you. 

SHARING INFORMATION WITH OTHERS 

The NEA and PeDRA vigorously guard the privacy of the information it receives from individuals. NEA and PeDRA’s privacy procedures include the following: neither NEA nor PeDRA sells, rents, or divulges personally identifiable information to anyone unless required by law, with the exception of donors being recognized by name in certain public-facing materials according to the respective policies of NEA and PeDRA. Deidentified, aggregate data may be shared either internally or externally for purposes of program development, outcomes tracking, or fulfillment of obligations to funding agencies interested in the mission-related impact of NEA and PeDRA.   

CHILDREN’S PRIVACY ONLINE 

Although the Eczema Counts platform is only intended for guests over the age of 18, protecting the privacy of children remains  especially important to us. For this reason, we have adopted certain policies and procedures to help do so. 

1. The Information We Collect 
   We may collect personally identifiable information from a child if a user provides this information through a form, profile, discussion post, or similar. This information may include the child’s name, age, email address, gender, address and country of residence. NEA and PeDRA may use this personally identifiable information to help provide the most appropriate and thorough answers to questions received or to send a visitor in the right direction. For example, NEA or PeDRA may use an email address to seek more detailed information in order to answer a submitted question or to provide a private answer to a question.  Additionally, when visitors come to Eczema Counts we may passively collect certain non-personally identifiable computer information. This information may include the user’s: type of computer operating system (e.g., Windows 7 or Mac OS X Snow Leopard), the user’s IP Address, the user’s web browser (e.g., Mozilla Firefox or Internet Explorer), the frequency with which users visit various parts of the site, and information regarding the user’s Internet service provider. We do this in order to make Eczema Counts more interesting and useful to you and for various purposes related to NEA and/or PeDRa. We may collect this non-personally identifiable information through the use of software technologies such as unique identifiers or “cookies.” Cookies are small text files that we place in visitors’ computer browsers to store their preferences. You can choose to have your computer warn you each time a cookie is sent, or you can choose to “turn off” the acceptance of cookies from any website. If you turn cookies off, you won’t have access to many features that make your Web experience smoother, and some of our services may not function properly. 

2. How We Use, Disclose, and Store the Information We Collect 
   In addition to the purposes described in Section 1, we may actively collect and use personally identifiable information to track usage and to ensure users are following the site’s Terms of Use. In addition, we may use personally identifiable information to ban a user temporarily or permanently from the website if that user engages in inappropriate conduct on the site. We may disclose information where we are required to do so by law, for example, in response to a court order or a subpoena, or for other judicial process. We may also disclose information reasonably necessary to protect the safety of a child or a participant on this website. We may disclose information to service providers or other affiliated companies who provide support for the operations of our website and who we believe do not use or disclose the information for any other purpose. To the extent permitted by applicable law, we also may disclose personally identifiable information in response to a law enforcement agencies or other public agencies (including schools or children services) request or if we feel that such disclosure may prevent the instigation of a crime, facilitate an investigation related to public safety or protect the safety of a child using our website, to protect the security or integrity of our website, or enable us to take precautions against liability. When possible, we will use reasonable methods of providing parents notice of this disclosure. 

Collection of Information for Third-Party Sites and Sponsors 
Information about children is not collected for marketing purposes, and it is not disclosed to third parties. Nor do we allow third-party companies to advertise to our users. We intend to keep this site free from direct advertising. 

Security 
We have established and maintain reasonable procedures to protect the confidentiality, security, and integrity of personal information collected from children. 

Contact Us 
If you have questions or wish to send us comments about this Privacy Policy, please contact us via our Contact Us form form with your questions or comments, or write to NEA at:
National Eczema Association 
505 San Marin Drive, #B300 
Novato, CA 94945 

When contacting us, please be sure to provide us with your e-mail address and a telephone number where we can reach you. Unless you so request, any personal information that you provide in communications to the above e-mail and postal mail addresses will not be used to send you promotional materials. 

SECURITY 

In order to prevent unauthorized access and protect our users’ personal information, we strive to maintain physical, electronic and administrative safeguards to secure the information we collect online, using a secure server when appropriate. This secure server software, SSL (Secure Sockets Layer), encrypts all information you input before it is sent to us. Furthermore, any customer data we collect is protected against unauthorized access with the use of digital certificates. 

LINKS TO OTHER SITES 

Our site may provide links to other websites where you can find out more about other organizations, educational resources, or products and services related to eczema and patient-centered outcomes research. Please note that neither the National Eczema Association nor Pediatric Dermatology Research Alliance is responsible for the information practices of linked sites. We encourage you to review the privacy policy of each site you visit. 

PRIVACY POLICY CHANGES 

The privacy policy set out above is effective as of May 1, 2022, and applies to all information previously obtained by NEA and/or PeDRA through Eczema Counts. We reserve the right to change the privacy policy at our sole discretion. Changes to the Eczema Counts privacy policy will be posted on the website. We encourage you to review our policy from time to time. 

QUESTIONS OR CONCERNS 

The National Eczema Association and Pediatric Dermatology Research Alliance welcome your questions and comments about this privacy statement, about the practices of the National Eczema Association and/or Pediatric Dermatology Research Alliance, and about your experiences with Eczema Counts. To contact us with questions about our privacy policy: 

National Eczema Association 

505 San Marin Drive, Ste. B300 
Novato, CA 94945 

Phone: 415-499-3474 or 800.818.7546 
Fax: 415.472.5345 
Email:  contact us on our Contact Us page

Pediatric Dermatology Research Alliance 

205 SE Spokane St. Suite 300 
Portland, OR 97202 
Phone: 971-369-4690 
Email: info@pedraresearch.org