WHAT IS THE PRIVACY POLICY FOR ECZEMA COUNTS?
Eczema Counts is a gamified online educational platform (website) hosted by the National Eczema Association (NEA) and the Pediatric Dermatology Research Alliance (PeDRA). NEA and PeDRA respect the privacy of each individual who visit the Eczema Counts platform. We are grateful for your support and the critical role you play in helping us continue our valuable work. To protect your privacy, we provide this notice explaining our information practices and the choices you can make about the way your information is collected and used.
COLLECTION & USE OF DATA
In order to provide our users the best experience possible on the Eczema Counts platform, we collect information about visitors, such as the number of visitors, what pages they access and the length of their visit. This type of information is shared outside NEA and PeDRA only as compiled data with no information that can identify any one individual.
We collect information such as your name, postal address and e-mail address when you choose to share that information. Examples include: when you request information from us, register for Eczema Counts, or provide information to your online profile. This information is used to provide you with information, connect you to the Eczema Counts community, or deliver materials (e.g. game prizes) to you. If you provide your postal or e-mail address, you may receive postal and e-mail communications from NEA and/or PeDRA. We may use demographic data that you provide to tailor your experience on this platform and develop content or activities that are most relevant to you.
OPTING OUT OF COMMUNICATIONS
We send out electronic and other communications to Eczema Counts participants to provide updates on platform activities, reminders, news, or other similar messages. You can elect not to receive communications from us, either by updating your communications preferences or by contacting us through our Contact Us form. In addition, all Eczema Counts e-mail communications have easy-to-follow unsubscribe instructions at the bottom of each e-mail. Please note that opting out of email communication might inhibit participants from completing all Eczema Counts game challenges. The NEA and PeDRA are unable to make special accommodations for participants who have opted out to complete any such challenges.
RIGHT TO BE FORGOTTEN
In accordance with the European Union’s (EU) General Data Protection Regulation (GDPR), as of May 25, 2018 any individual may request that their information be deleted, corrected, frozen, or updated as desired. To request this, please contact us through our Contact Us form.
USE OF COOKIES
“Cookies” are small pieces of information that are stored by your web browser on your computer’s hard drive. The Eczema Counts website uses cookies to verify forms. Consult the help menu on your web browser regarding options for preventing or accepting cookies. Please be aware that if you block cookies, some of our website functions may not be available to you.
SHARING INFORMATION WITH OTHERS
The NEA and PeDRA vigorously guard the privacy of the information it receives from individuals. NEA and PeDRA’s privacy procedures include the following: neither NEA nor PeDRA sells, rents, or divulges personally identifiable information to anyone unless required by law, with the exception of donors being recognized by name in certain public-facing materials according to the respective policies of NEA and PeDRA. Deidentified, aggregate data may be shared either internally or externally for purposes of program development, outcomes tracking, or fulfillment of obligations to funding agencies interested in the mission-related impact of NEA and PeDRA.
CHILDREN’S PRIVACY ONLINE
Although the Eczema Counts platform is only intended for guests over the age of 18, protecting the privacy of children remains especially important to us. For this reason, we have adopted certain policies and procedures to help do so.
- The Information We Collect
We may collect personally identifiable information from a child if a user provides this information through a form, profile, discussion post, or similar. This information may include the child’s name, age, email address, gender, address and country of residence. NEA and PeDRA may use this personally identifiable information to help provide the most appropriate and thorough answers to questions received or to send a visitor in the right direction. For example, NEA or PeDRA may use an email address to seek more detailed information in order to answer a submitted question or to provide a private answer to a question. Additionally, when visitors come to Eczema Counts we may passively collect certain non-personally identifiable computer information. This information may include the user’s: type of computer operating system (e.g., Windows 7 or Mac OS X Snow Leopard), the user’s IP Address, the user’s web browser (e.g., Mozilla Firefox or Internet Explorer), the frequency with which users visit various parts of the site, and information regarding the user’s Internet service provider. We do this in order to make Eczema Counts more interesting and useful to you and for various purposes related to NEA and/or PeDRa. We may collect this non-personally identifiable information through the use of software technologies such as unique identifiers or “cookies.” Cookies are small text files that we place in visitors’ computer browsers to store their preferences. You can choose to have your computer warn you each time a cookie is sent, or you can choose to “turn off” the acceptance of cookies from any website. If you turn cookies off, you won’t have access to many features that make your Web experience smoother, and some of our services may not function properly.
- How We Use, Disclose, and Store the Information We Collect
In addition to the purposes described in Section 1, we may actively collect and use personally identifiable information to track usage and to ensure users are following the site’s Terms of Use. In addition, we may use personally identifiable information to ban a user temporarily or permanently from the website if that user engages in inappropriate conduct on the site. We may disclose information where we are required to do so by law, for example, in response to a court order or a subpoena, or for other judicial process. We may also disclose information reasonably necessary to protect the safety of a child or a participant on this website. We may disclose information to service providers or other affiliated companies who provide support for the operations of our website and who we believe do not use or disclose the information for any other purpose. To the extent permitted by applicable law, we also may disclose personally identifiable information in response to a law enforcement agencies or other public agencies (including schools or children services) request or if we feel that such disclosure may prevent the instigation of a crime, facilitate an investigation related to public safety or protect the safety of a child using our website, to protect the security or integrity of our website, or enable us to take precautions against liability. When possible, we will use reasonable methods of providing parents notice of this disclosure.
Collection of Information for Third-Party Sites and Sponsors
Information about children is not collected for marketing purposes, and it is not disclosed to third parties. Nor do we allow third-party companies to advertise to our users. We intend to keep this site free from direct advertising.
Security
We have established and maintain reasonable procedures to protect the confidentiality, security, and integrity of personal information collected from children.
Contact Us
If you have questions or wish to send us comments about this Privacy Policy, please contact us via our Contact Us form form with your questions or comments, or write to NEA at:
National Eczema Association
505 San Marin Drive, #B300
Novato, CA 94945
When contacting us, please be sure to provide us with your e-mail address and a telephone number where we can reach you. Unless you so request, any personal information that you provide in communications to the above e-mail and postal mail addresses will not be used to send you promotional materials.
SECURITY
In order to prevent unauthorized access and protect our users’ personal information, we strive to maintain physical, electronic and administrative safeguards to secure the information we collect online, using a secure server when appropriate. This secure server software, SSL (Secure Sockets Layer), encrypts all information you input before it is sent to us. Furthermore, any customer data we collect is protected against unauthorized access with the use of digital certificates.
LINKS TO OTHER SITES
Our site may provide links to other websites where you can find out more about other organizations, educational resources, or products and services related to eczema and patient-centered outcomes research. Please note that neither the National Eczema Association nor Pediatric Dermatology Research Alliance is responsible for the information practices of linked sites. We encourage you to review the privacy policy of each site you visit.
PRIVACY POLICY CHANGES
The privacy policy set out above is effective as of May 1, 2022, and applies to all information previously obtained by NEA and/or PeDRA through Eczema Counts. We reserve the right to change the privacy policy at our sole discretion. Changes to the Eczema Counts privacy policy will be posted on the website. We encourage you to review our policy from time to time.
QUESTIONS OR CONCERNS
The National Eczema Association and Pediatric Dermatology Research Alliance welcome your questions and comments about this privacy statement, about the practices of the National Eczema Association and/or Pediatric Dermatology Research Alliance, and about your experiences with Eczema Counts. To contact us with questions about our privacy policy:
National Eczema Association
505 San Marin Drive, Ste. B300
Novato, CA 94945
Phone: 415-499-3474 or 800.818.7546
Fax: 415.472.5345
Email: contact us on our Contact Us page
Pediatric Dermatology Research Alliance
205 SE Spokane St. Suite 300
Portland, OR 97202
Phone: 971-369-4690
Email: info@pedraresearch.org